Brendan Locke
On this episode, in honor of Sarcoma Awareness Month, Brendan Locke shares the sarcoma journey of his wife, Melissa Locke. Brendan and Melissa have been vital in the advocacy work to get July nationally recognized as Sar...
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Sarcoma Stories
Sarcoma Foundation of America
Rohini Deivasigamani
On this episode, we’re joined by Rohini Deivasigamani, a 25-year-old from New Jersey who was diagnosed with Ewing sarcoma at 14 years old. Now, a decade later, she reflects on her journey from teenage cancer patient to y...
Sarah Downey
This week, we speak with Sarah Downey, an angiosarcoma patient, advocate, and writer. Sarah takes us through her diagnosis journey, which included misdiagnosis and dismissal of symptoms, all while navigating her senior y...
Gianna Cericola
On this episode, we speak with Gianna Cericola, a survivor of Desmoplastic Small Round Cell Tumor (DSRCT for short). After two long years, she rang the bell signifying the end of active treatment just two weeks before we...
Tasha Nathan
On today’s episode we’re sharing the sarcoma story of one of our Sarcoma Stories hosts, Tasha. Tasha has been hosting Sarcoma Stories since its inception in November 2024 and she’s now sharing her story about her Embryon...
Pan Pantziarka
On this episode, we speak with SFA Director of Europe’s Strategy and Engagement, Pan Pantziarka. While he is an incredible staff member at SFA who supports SFA’s global work, he also has a sarcoma story of his own as a c...
Kate & Kristen
In this episode, we sit down with Kate DeForge, who was diagnosed with undifferentiated pleomorphic sarcoma as a young adult. Kate opens up about what it’s been like navigating young adulthood with sarcoma, and shares th...
Simone Cheatham
On this episode, we’re joined by Simone Cheatham, a member of the Race to Cure Sarcoma Chicago Committee. Simone became actively involved after her late father, Hardin—lovingly referred to as “Dad” throughout this episod...
Julie Harp
In this episode, we speak with Julie Harp, who shares her experience as a care partner to her son, Don, during his sarcoma journey and as he approached the end of life. Julie offers a unique and powerful perspective on c...
Crystal Mollica
We return from winter break and are joined by Crystal Mollica, a malignant peripheral nerve sheath tumor (MPNST) survivor. After receiving an initial misdiagnosis, Crystal trusted her instincts and advocated for a second...
Carol Haslam
In this episode, we sit down with Carol Haslam of Sarcoma Cancer Ireland. Carol not only is a board member and driving force behind the organization’s operations, but she is also a synovial sarcoma survivor and passionat...
Joel & Amanda Stetler
On today’s episode, we’re joined by Joel and Amanda Stetler — a dynamic couple from California. Joel has been knowingly living with a low-grade fibromyxoid sarcoma, and in the ten years since his diagnosis, the Stetlers ...
Chris Barry
On this episode, we sit down with Chris Barry, a rare disease patient and desmoid tumor survivor, dad, and civil engineer living in the San Francisco Bay Area. Diagnosed with familial adenomatous polyposis (FAP) as a tee...
Andrey Ivchenko
On this episode of Sarcoma Stories, we’re joined by actor Andrey Ivchenko as he shares his powerful journey through a chondrosarcoma diagnosis.While you may not be familiar with Andrey’s sarcoma story, you might recogniz...
SFA's Founders
We’re back from our summer hiatus with a very special episode to kick off Season 2!August 2025 marked the beginning of SFA’s 25th anniversary year, and we couldn’t think of a better way to celebrate than by going back to...
Breon and Leia Glass
On this episode, we speak with Breon and Leia Glass. Breon, a 29-year-old synovial sarcoma survivor and law enforcement officer, found his tumor while on a foot pursuit. He takes us through his diagnosis journey, the dec...
Emily Oberst
On this episode, we’re joined by Emily Oberst, an Ewing sarcoma survivor. Emily shares her experience navigating childhood cancer — from the decision making around surgery as an active young person to considering fertili...
Dan Rubin
On this episode, we sit down with Dan Rubin, who was diagnosed with Ewings sarcoma in 2017 and has since navigated many, many different types of therapies to manage his diagnosis.Dan’s unique record keeping system, which...
Brian Fugere
On this episode, we speak with Brian Fugere, who is a synovial sarcoma survivor of 20 years. Brian shares his perspective on what the sarcoma landscape looked like 20 years ago at the time of his diagnosis, taking us thr...
Shaun Nerney
On this episode of Sarcoma Stories, we welcome Shaun Nerney—actor, singer, performer, Dorito enthusiast and avid Knicks fan—to share his journey as a care partner to his fiancée, Meghan, who has been living with fibromyx...